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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Advice Are You Grateful To Share With Others About Lymphoma?

By A MyLymphomaTeam Member 45 answers
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Do You Have A Hobby To Help Take Your Mind Off The Cancer?

By A MyLymphomaTeam Member 26 answers
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Which Lymphoma Symptom Surprised You The Most?

By A MyLymphomaTeam Member 84 answers
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Could You Share Any Dietary Changes And Tips That Have Helped With Lymphoma?

By A MyLymphomaTeam Member 48 answers
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2201 questions

MCL And The TP53 Mutation

A MyLymphomaTeam Member asked a question 💭
Australia

I’ve been diagnosed with MCL which has the TP 53 gene mutation. I’d like to find out if anyone with this mutation has had any specific treatments or drugs dealing with this, and if so, what was the outcome?
Regards
John

Please Read Description Of My Question Below.

A MyLymphomaTeam Member asked a question 💭
Walled Lake, MI

As of now my last chemo treatment was May 18,2023. Had a pet-scan this last Tuesday and it came back clear of any cancer cells. Has anyone experienced any difficulty with swallowing after chemo. I now have to have some kind of
swallowing test.

A MyLymphomaTeam Member

I am so sorry you are having this issue.

July 27, 2023

Don’t Quit

A MyLymphomaTeam Member asked a question 💭
Oceanside, CA
A MyLymphomaTeam Member

I am trying to deactivate my account and it is saying my password is invalid. Is there a phone number of an administrator that I can speak with? I do sympathize with everyone going through the cancer… read more

July 19, 2023

CLL Related Question

A MyLymphomaTeam Member asked a question 💭
Houston, TX

Can Anyone explain how lab counts can drop and in 3 months come back up. I know The WBC will still fluctuate. But the other ones they were compromising 71.8% in March and now down to 33% ?

A MyLymphomaTeam Member

Even I would like to know about WBC fluctuations. I am into remission past 4 months but my WBC does not go above 2500. My doctor says ultimately it will settle somewhere around 2000 and I will have to… read more

June 15, 2023

Anyone Have Experience With Rituximab Treatments

A MyLymphomaTeam Member asked a question 💭
Mashpee, MA

Hi friends, I recently had a bone marrow biopsy that showed that 37% of my bone marrow is being affected by the marginal zone lymphoma. My doctor has recommended 4 weekly treatments of Rituximab. I am curious to know from any of you who have had treatments with this what your experience has been and what I should expect. My understanding is that some people have allergic reactions to the treatment and that it also affects your immune system, but other than that I don’t know much. Thanks in… read more

A MyLymphomaTeam Member

I hope you are doing ok now that you are on Rituximab
I had Rituximab with and after chemo infusions once per 4 weeks and then once every thtee weekd for the nexyt type of chemo. I am not in… read more

September 1, 2024

What Is The Difference Of Marginal Zone Lymphoma Tonon Hodkins

A MyLymphomaTeam Member asked a question 💭

I Need Information About Graft V Host Disease After Bone Marrow Transplant

A MyLymphomaTeam Member asked a question 💭
Albany, NY

I am in remission from T cell lymphoma but 9 months after bone marrow transplant I developed GvHD.
Is it manageable, curable, or chonic?

Anyone Have Their Indolent Cancer Become Active And If So How Long After Diagnosis?

A MyLymphomaTeam Member asked a question 💭
Los Angeles, CA
A MyLymphomaTeam Member

Thank you for answering. I have non Hodgkins.

August 1, 2023

Does Anyone Have Sjorgren’s Autoimmune Condition As Cause Of Lymphoma?

A MyLymphomaTeam Member asked a question 💭
Wilmington, DE

I am having lots of testing. So far have not been told that I have it definitely but am ?progressing and high risk .

A MyLymphomaTeam Member

Yes! The blood test didn’t show it & I don’t want the mouth biopsy because my doctor says they just treat the symptoms anyway. I just started getting mouth sores too. I put gel drops in my eyes at… read more

June 11, 2023 (edited)

Is Anyone Using CBD Oil? I Am But It’s Very Expensive & Wonder If It Is Of Any Benefit.

A MyLymphomaTeam Member asked a question 💭
Sydney, AU
A MyLymphomaTeam Member

Thankyou Peter. That was very helpful. All the best. Carolyne

June 13, 2023
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