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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Could You Share Any Dietary Changes And Tips That Have Helped With Lymphoma?

By A MyLymphomaTeam Member 48 answers
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What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyLymphomaTeam Member 26 answers
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What Are Your Top Tips For Dealing With Lymphoma In The Heat?

By A MyLymphomaTeam Member 45 answers
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Which Lymphoma Symptom Surprised You The Most?

By A MyLymphomaTeam Member 84 answers
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2180 questions

Has Anyone Developed Post Chemo Granulomas?

A MyLymphomaTeam Member asked a question 💭
San Diego, CA

My mid-treatment PET was NED. I completed 6 cycles and my after treatment PET had 2 small reportable nodes in new places. Needle biopsy showed both with granulomas(non-cancerous clusters of white blood cells indicating an auto immune disease called sarcoidosis)

A MyLymphomaTeam Member

I’m sorry your treatment didn’t go as planned. Hopefully you will receive good news soon.

March 17, 2024

I Have Follicular Lymphoma And For No Apparent Reason I Throw Up At Least Once A Week. Bit Actually Feel Fine With No Stomach Up Set. Just K

A MyLymphomaTeam Member asked a question 💭
Australia

Has Anyone Used Gabapentin For Peripheral Neuropathy? I Have Had Some Tingling In My Toes Since I Started Taking Revlemid. Thanks!

A MyLymphomaTeam Member asked a question 💭
Mamaroneck, NY
A MyLymphomaTeam Member

I was recently prescrrbed cymbalta for the neuropathy and it seems to be working.

July 12, 2024

Does Anyone Have Experience With Successfully Doing IVF And Delivering A Healthy Baby After Chemo?

A MyLymphomaTeam Member asked a question 💭
Houston, TX

My daughter has relapsed classic Hodgkin lymphoma.

The first time she did ABVD and then was escalated to BEACOPP.

This time she’s doing immunotherapy with ICE, and that will be followed by an autologous stem cell transplant.

Her ovarian reserve is already very low, and the ASCT will inevitably destroy whatever is left.

We froze her eggs 4 years ago when all of this began.

She is terrified that she may never become a mother.

Has anyone else here been in a similar position and had… read more

I Need To Lose 15 Lbs I’m Stage 1 Non Hodgekins Lymphoma How And What Do I Use Or Try?

A MyLymphomaTeam Member asked a question 💭
Vineland, NJ
A MyLymphomaTeam Member

Thank you

March 15, 2024

Loss Of Appetite And Feeling Like Vomiting. How To Conquer?

A MyLymphomaTeam Member asked a question 💭
Odenton, MD

Okay, I know these are common symptoms, but how have you conquered loss of appetite especially when coupled with feeling like vomiting every time you take a bite?

A MyLymphomaTeam Member

Turns out Loss Of Appetite And Feeling Like Vomiting was C. Diff infection.

April 7, 2024

Who Has Been On Rituximab Maintenance I Had 4 Infusions And Now On Maintenance Every 2 Months Feeling Hopeful

A MyLymphomaTeam Member asked a question 💭
Massachusetts
A MyLymphomaTeam Member

I was treated w/rituximab only approx. 3 years ago & at my last oncologist appt. My doctor said that I probably wouldn't die from SMZL !!!!!

March 16, 2024

Has Anyone Had A Bad Experience With Zanubrutinib?

A MyLymphomaTeam Member asked a question 💭
Issaquah, WA
A MyLymphomaTeam Member

That’s good to hear!🤞🏻

March 22, 2024

I Have Mycosis Fungoides, Just Started Bexarotene. Has Anyone Taken That Med? I Have Lowback And Hip Pain, Not Sure If It's A Side Effect.

A MyLymphomaTeam Member asked a question 💭
Riverside, CA

Hi, Has Anyone Experienced Numbness In Feet After Having Rituximab Treatment. Best Regards John.

A MyLymphomaTeam Member asked a question 💭
Shepshed, UK
A MyLymphomaTeam Member

Hi Micheleri, Many thanks for your input and I will ask my consultant regarding your experience with said drugs. I wish you good health for the future. Best wishes John.

March 27, 2024
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