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Does Targretin Affect Your Sense Of Taste? I Have CTCL MF
Starting BR Treatment Soon. Do Most People Use A Port And If So, Is It Worn Throughout The Therapy Duration?
I had two days a month of iv for six months without a port. Oncologist daid he preferred no port because of possible complications- as long ss the viens held up. I was blessed that this plan worked… read more
Anyone Know Where I Can Find Someone To Hang Out With Me At The Beach For 6-8 Weeks After CAR T THERAPY? Just Sitter/driver Who Likes Beach.
I live near Galvseton, TX
My Nephew Was Just Diagnosed With ALS. Can Anyone Tell Me More About This Variant? Also, I’m Noticing A Trend In My Family.
My older brother is on “wait and see” and immunotherapy. My first cousin has MLL, had had two bone marrow transplants, and now not making any new RBC’s. He’s very sick and has been hospitalized for weeks. My nephew is just beginning chemotherapy (not sure which treatment plan, except it will be infusions, beginning with a 6 month treatment plan. He’s at the cancer center in Washington State close to Seattle. He has a history of mental illness, and substance abuse/addiction as well. He was in the… read more
And to you as well
Has Anyone Had NHL B-cell Stage 4 Cancer? After The 6 Months Of Chemo, What Are Your Side Effects?
Any real fast growing lump or tumor on eyeball? Out of control muscles shaking whole arm.
We are contacting 1.💜 It's in remission after the 6 months of rchop as well. Do you /did have uncontrollable trembles? 🙃 Thank you. Candidia overgrowth is something to look into. Chemo makes it grow… read more
Does Anyone Else Get Real Nasty Headaches, Then Have Those Pesky Nodes Pop And Visit As The Pain Starts Easing Down?
I have LPL lymphoplasmatic lymphoma. The popping visits seem to last several days...
New Brain Lesion During R CHOEP Treatment For High Grade B Cell Lymphoma
Hello everyone, seeking advice and experiences here. My mom 58-year-old has been undergoing R CHOEP treatment for triple expressor high-grade B cell lymphoma. A recent PET scan after the 3rd cycle revealed a "7 x 4 x 6 mm enhancing lesion in the left superior temporal gyrus with no significant FDG uptake." The initial scan in December 2023 did not show any brain lesions, but there were lesions near the eye and adrenal glands.
We're concerned about this new development in the brain. CNS… read more
Sarala,
Hi and welcome to the site. Everyone on here is so nice, helpful and supportive. I have/had DLBCL and had treatments of RCHOP chemo. Sending prayers for you and your mom. Kelly
I Got Diagnosed With NHL Follicular Lymphoma In 2020 And Under Watch & Wait Since Then Without Any Symptoms And Stayin Very Healthy Now
But recently my cervical, above shoulder and occipital lymph nodes got swollen for the last 30 days without symptoms. Actually I am fit, healthy and hitting my gym regularly. My question is should I stop wait & watch and opt for treatment of Betamustine, Rituximab therapy as my Doctor suggested at the beginning when diagnosed, but he followed wait and watch till any symptoms appear. Can you guide me in this situation.
When I first went to the doctor my lymph node had been enlarged for over a year (or even more 😳) but I still felt good. I was diagnosed with stage 3 (FL) and sent to chemo. So you better see your… read more
I Have Follicular Lymphoma, Does Your Body Hurt At Night Interrupting Your Sleep? I Have This Problem. Am I Alone?
Yes! I have joint pain but I also developed peripheral neuropathy from chemo. The burning pain in my feet and hands can be unbearable at times when it flares. I also have lots of lower body cramps at… read more
After Diagnosis..did Anyone Have Severe Reactions To Sunlight. Severe Burning & Itching In Any Exposed Areas . Steroid Cream Not Successful.
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