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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Could You Share Any Dietary Changes And Tips That Have Helped With Lymphoma?

By A MyLymphomaTeam Member 48 answers
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What Advice Are You Grateful To Share With Others About Lymphoma?

By A MyLymphomaTeam Member 45 answers
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What Tips Do You Have To Help With Seasonal Allergies?

By A MyLymphomaTeam Member 34 answers
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I Suspect The Cov'd Vaccine Triggered Lymphoma

By A MyLymphomaTeam Member 26 answers
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2188 questions

How Common Is It To Fail One Treatment After Another In A Short Period Of Time? Follicular Lymphoma, Indolent.

A MyLymphomaTeam Member asked a question 💭
Sparks, NV
A MyLymphomaTeam Member

Stay strong, I've failed five in five and stopped a sixth due to financial and insurance stuff.

November 1, 2023

Starting Treatment Again

A MyLymphomaTeam Member asked a question 💭

My wbc has been 55.2 & 53.8. I had Hodgkins Lymphoma & CLL in 2018 stage 4. My CLL is active again. My Cancer Dr says let's give it 3 more months & reck wbc again and then discuss treatments. Is this normal to do?
Makes me agitated & nervous and worried.

A MyLymphomaTeam Member

🤥 sounds awful to have to wait 3 months before rechecking the wbc and RBC. My Dr does full panel labs every other week and then adjusts the other medication as needed for the kidneys and general… read more

February 8, 2024

I Have Follicular B-cell Indolent Cancer. I Have A Large Lump On My Neck Above Clavicle . Is There A Way To Measure Its Size?

A MyLymphomaTeam Member asked a question 💭
Canada, KY
A MyLymphomaTeam Member

The oncologist will use a CT/PET scan to measure it exactly.

October 26, 2023

Follicular Lymphoma Stage 1

A MyLymphomaTeam Member asked a question 💭
Somewhere

My husband had a lump in the groin and was diagnosed with FL stage 1 and the oncologist suggested to wait and watch. In the last scan lump’s sizes are much smaller and it seems he got in spontaneous remission. But there is a concerning uptake in one of the tonsils. We are very worried and we have to wait next week for the appointment with the oncologist. Could it be lymphoma but in another site? Has it happened to anyone else? Thank you very much.

A MyLymphomaTeam Member

I don't know for sure, but the disease is in the blood, so I would expect that it could appear anywhere at any time. I'd love to know what your doctor said.

November 10, 2023

Anyone Have Any Suggestions To Help Reduce Swollen Glands In My Neck?

A MyLymphomaTeam Member asked a question 💭
Lawrence, KS

I am on "Watch and Wait." I am stage 3, grade 2 FL. No other symptoms, but my neck glands on one side are uncomfortable. Not complaining, just wondering how others have dealt with this naturally...massage? Any natural supplements? thanks!

A MyLymphomaTeam Member

Thanks!

November 2, 2023

I’m Allergic To Rituxan

A MyLymphomaTeam Member asked a question 💭
England uk

I Have,T Cell Lymphoma, They Are Treatingme With UVB What Dose That Do? Any Why Do They Say Wait An See ?

A MyLymphomaTeam Member asked a question 💭
Camero Park Calif
A MyLymphomaTeam Member

I have resisted chemo for my lymphoma. The last time I met with my specialist he said nothing had changed after he checked the xrays.

October 25, 2023

How Do You Cope With Seasonal Changes And Lymphoma?

A MyLymphomaTeam Member asked a question 💭
San Francisco, CA
A MyLymphomaTeam Member

Happy for you Marta. We have so many blankets, I need to get rid of them - LOL

February 5, 2024

Anyone Have Experience With Zanubrutinib?

A MyLymphomaTeam Member asked a question 💭
New Jersey, NJ

Moving from chemo ( Rituxamab/bendamustine ) to taking zanubrutinib for mantle cell lymphoma. Chemo was not as effective as hoped so now on to the next thing. Anyone have experience with taking zanubrutinib? thanks

A MyLymphomaTeam Member

Roger3
I have finished the chemo as you did with Retuxiban and bendamustine, however, I am starting cytoterabine for my next stage in dealing with Mantle Cell lymphoma
Stay strong and wishing you… read more

November 7, 2023

What To Do About Having A Cold Whilst On Chemo For NHL

A MyLymphomaTeam Member asked a question 💭
Sussex uk
A MyLymphomaTeam Member

Same as before I was having chemo.

October 24, 2023
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