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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Are Your Top Tips For Dealing With Lymphoma In The Heat?

By A MyLymphomaTeam Member 45 answers
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What's A Common Misconception About Lymphoma?

By A MyLymphomaTeam Member 65 answers
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Do You Follow A Specific Diet To Help With Lymphoma?

By A MyLymphomaTeam Member 38 answers
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What’s One Thing About Lymphoma That People Rarely Discuss But Should?

By A MyLymphomaTeam Member 44 answers
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2199 questions

CLL/SLL Lymph Node

A MyLymphomaTeam Member asked a question 💭
Waterford, MI

Hi, So in January 2023 I was diagnosed with CLL, no symptoms. I went for my six month check up and my symptoms are tiredness & My lymph nodes along my jaw line neck back of the head are prominent. Doctor tells me if they stay like that in three months he believes I should start treatment. That I may have SLL which is more aggressive. Not sure what to do as anybody else experienced this. I’m scared.

A MyLymphomaTeam Member

Hi I was watch and wait for 4-1/2 years. I’m on acalabrutinib. I call it the miracle drug. Only side affect is muscle pain in my legs. But my blood work is back to normal. Just make sure you have a… read more

October 14, 2023

I Want To Know All I Can About CNS Lymphoma

A MyLymphomaTeam Member asked a question 💭
Saugerties, NY

Has Anyone Had Any Side Effects From Radiation Around The Mesenteric For Follicular NHL?

A MyLymphomaTeam Member asked a question 💭
Clermont, FL
A MyLymphomaTeam Member

Thank you and yes that has helped him.

August 3, 2023

Has Anyone Had Stage IVb Nodular Sclerosing Hodgkin's Disease?

A MyLymphomaTeam Member asked a question 💭
Temple, TX

My fiance got diagnosed at an early age and was told in remission at one point, but now his cancer is not responding to any treatments, and he had mixed reviews with the ICE treatment but didint proceed due to other symptoms he couldn't handle.

The doctor told him it could be months and he will be gone and to start planning his funeral
We are supposed to get a second opinion in August at another bigger hospital,
I need to know if any ones dealt with similar things and is there anything to… read more

A MyLymphomaTeam Member

A second opinion is always a good idea, I know it’s hard to navigate but it is worth it. Sending prayers

July 24, 2023

Do Anyone Experience Coughing Up Phlegm After Treatment. Mine Clears Up Right Before The Next Treatment

A MyLymphomaTeam Member asked a question 💭
Detroit, MI
A MyLymphomaTeam Member
July 24, 2023

Has Anyone Got Mantle Cell Lymphoma That Relapses And What Do Drs Give For The Relapse?

A MyLymphomaTeam Member asked a question 💭
Melbourne, AU

Treatment For Indolent MCL

A MyLymphomaTeam Member asked a question 💭
Colorado Springs, CO

In the article titled “Oral Treatments vs. Chemotherapy for Indolent Non-Hodgkin Lymphoma (NHL)” there was a discussion and chart detailing the oral drugs being used to combat indolent MCL. For each of the drugs listed there was a comment saying that those drugs are only approved (for MCL) after the patient had already received another line of treatment. What would those other lines be? I’ve been consistently told that my case of indolent MCL should NOT be treated unless and until I start… read more

Anyone On Acalabrutinib? I Have To Start Next Week.

A MyLymphomaTeam Member asked a question 💭
Pearl River, NY
A MyLymphomaTeam Member

i on calquencetil january , hope be off it then , ben on it for over a yr

July 22, 2023

Anyone Get An Itchy Rash A Couple Of Weeks After First Rituxan/bendamustine Infusions

A MyLymphomaTeam Member asked a question 💭
New Jersey, NJ
A MyLymphomaTeam Member

I had Hodgkin lymphoma I'm fine now😇

July 24, 2023

NK-T Cell Lymphoma Of The Skin

A MyLymphomaTeam Member asked a question 💭
Australia

Hi just wanted to connect with anyone who has NK-T Cell Lymphoma of the skin
We live in Australia. My mum just got diagnosed with it she is 75 years old. It’s so hard to believe as she looks and feels really well. We are thinking of bring her to the USA for a second opinion and would like to know who the best doctor or team to see. Any information would be greatly appreciated
Thanks Frances

A MyLymphomaTeam Member

Mum has had it for 8 months but she has t had chemo as she now has a heart problem. One thing after another

November 30, 2023
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