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Is Anyone With CLL And On A BTK Blocker (such As Acalabrutinib) And After And Had To To Discontinue The Use Of This BTK Blocker?
I’ve been on Calquence (acalabrutinib) for 14 months with wonderful results for reversing the Nephrotic Syndrome my CLL was causing to my kidneys. Then earlier this month I developed EXTREME diarrhea for over 2 weeks. I was hospitalized to have a constant potassium/hydration infusion drip line for 5 days and a colonoscopy. I was also taken off the medication. The Drs can only explain that this must be a side effect of the medication. Does anyone know what are the next treatment options when the… read more
I have CLL/SLL and MCL
Everyone progresses differently
But, I am 3 years remission, would not change a thing.
Chemo, diet change, essential oils and a lot of prayers put me where I am today.
I… read more
Anyone Out There Have Extra-nodal NK/T-cell Lymphoma, Nasal Type, Driven By EBV?
Yes, diagnosed 10/14/22. I have been in a clinical trial at MSKCC since then.
Has Anyone Tried High Dose Vitamin C Drip And Or Mistletoe Injection? Thoughts?
Alternative options
No, I have not tried any of those type of treatments.
Complications With NHL
Has anyone been diagnosed with Sweets Syndrome along with your NHL? I was diagnosed after 2nd chemo treatment in August 2021. I have been cancer free since December 2021. Unfortunately, the Sweets Syndrome recurred last May and now again about a month ago. Would be nice to get info from anyone else as far as treatment, symptoms, etc. Thanks. Have a glorious day!
My explanation: annoying itchy painful bumps on legs, blisters on top of feet. Interesting dr. Google read though. Thanks for reply. Hope all is well with you and yours Annetta. I check in from time… read more
What Does This Mean, A Large Population Of Lambda-monotypiic B-cells?
Ask Google 😄
I'm In Remission From Mantle Cell Lymphoma, A Rare Type Of Non-Hodgkin Lymphoma . I Have Immuno-therapy Infusions Every 2 Months For 2 Yrs
Should I still be on this site?
I Had A Chest Port Put In A Few Months Ago. It Itches And All My Bras Rub Against It Causing Irritation. It Hurts If I Lay On That Side
Does anyone else have problems with their chest port?
I did😇
Researching A Possible Link Between Aphasia And Chemo
I am concerned that I have an atypical type of aphasia as a result of my 6 months of chemo for follicular NHL. I am concerned that others may also suffer from this ailment and that it is currently unrecognized by health professionals. I believe that when considering our quality of life after chemo that possible research is warranted. Possible health trials may present themself but without a diagnosis we would not be eligible to participate. That it would exist as a disability, important for… read more
Hi, Bob--I wish I had good answers for you. Unfortunately, I don't. After I had my incident with chemo, I looked up articles about chemo toxicity. It seems that there are many articles and… read more
What’s Your Top Survival Tip For Managing Lymphoma In The Summer Heat?
We had record temperatures this summer and the heat was not pleasant. At this point, since I have not had treatment, I'm not noticing much difference after I was diagnosed with non-marginal non… read more
Have Terriable Pains In Arms And Neck , Also Have Sharp Pain On Right Side Of Head What Can It Be
i am on hyro-20mg- just like taking a tic tak- so i ventured out an go me some of the cbd/cbc gummies-it really helps alot better. thats how i get in the morings- i just cant move i hurt so much-so i… read more
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