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Hello! Im On The Calquence + Gazyva Protocol With The Gazyva Starting Next Week As Infusions. Any Tips For My First Two Days?
Hi Dorus, thank you for sharing how it is going for you. I just had my first treatment which is considered a test dose because it is small. It went very well, I think I had a small headache but I get… read more
I Was Treated For FL With Gazyva And Bendamustine. I’m In Remission. Tests Show That I Now Have No B Cells. Is There Support For This?
I'm Scheduled To Start Gazyva This Friday For 4 Weeks. Please Give Me Your Experience With This Drug. I Have Already Used Retuxium.
I finished this past Friday and all went well
Maintenance Program With [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]
I was diagnosed with Follicular Non Hudgkin's Lymphoma last year in November. Had 4 Month Chemo with Bendeka. Now in remission, and was recommended to do a 2 year maintenance treatment with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]. Anybody else has the same treatment? Is it standard to do it after chemo? What are the long term side effects? I feel fine, but still worry about this
Anybody completed the 2 year? Was any recurrence of the cancer shortly after finishing treatment.… read more
I tried the maintenance once and mine recurred while on it. I do much better just getting a round of rituxan when it recurs.
Rituximab And Intense Nausea And Loss Of Appetite
I am currently suffering Stage IV Bcell Follicular Lymphoma for which I receive monthly injections of Rituximab (Mabthera).
I suffer intense nausea, loss of appetite and fatigue. I have not enjoyed one meal for almost one year!
My doctors tell me I am imagining the nausea and that Rituximab never causes nausea and is a wonder drug!
Am I going crazy?
Graham
Has Anyone With CLL That Has Prolymphocytic Progression?
I recently had a bone marrow aspiration & biopsy which showed 64% of lymphocytes are prolymphocytes.
Thank you, Vonnie! B-PLL is a rare more aggressive progression from CLL where 55% or more of your lymphocytes are prolymphocytes. There seems not to be much data as less than 1% of CLL patients have… read more
I Got Diagnosed With NHL Follicular Lymphoma In 2020 And Under Watch & Wait Since Then Without Any Symptoms And Stayin Very Healthy Now
But recently my cervical, above shoulder and occipital lymph nodes got swollen for the last 30 days without symptoms. Actually I am fit, healthy and hitting my gym regularly. My question is should I stop wait & watch and opt for treatment of Betamustine, Rituximab therapy as my Doctor suggested at the beginning when diagnosed, but he followed wait and watch till any symptoms appear. Can you guide me in this situation.
When I first went to the doctor my lymph node had been enlarged for over a year (or even more 😳) but I still felt good. I was diagnosed with stage 3 (FL) and sent to chemo. So you better see your… read more
Anyone Notice A Decrease In Grip Strength Since Starting Treatment? I’m Taking Calquence And Gazyva
I am noticing certain tasks are becoming harder using my hands — using spray bottles opening jars cleaning - things like that but I have so far been able to jog and walk for exercise - just less intensity. Curious if anyone else has experienced this and whether there is something I can do to build grip strength back. And did it get better?
Squeeze ball is good idea. Thanks.
Anyone Have Injections To Increase Neutrophils? How Did It Go?
I have had the Neulasta patch that dispenses the med the day after I receive the chemo. It did cause some bone pain but I take Claritin before the med dispenses.
Venclexta + Gazyva
Into my first ever treatment! I have had 4-5 Gazyva infusions. Now awaiting start of oral Venclexta. However, my WBC is 1.13 which is quite low. Who has had a similar experience?
75 y.o. female with trisomy 12. My Dx was in 2013 and NHL is progressing. 😷🤔
Thanks for your support.
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