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With Indolent Follicular Lymphoma Do You Get Skin Rashes When In Remission Or When On Antibodies?
Thanks for replying. I really appreciate it. I get a little itchy now and then. And a rash now and then that goes away after a couple of weeks.
My Husband Has DLBCL. He Is Currently Receiving Chemo. He’s Restricting All Social Activities..anyone Else Doing The Same?
Thank you all for your responses. I will definitely share all of them with my husband!!
Has Anybody Else After Remission Noticed That Over Time After Treatment They Have Kidney Problems, Or Is It All Old People Problem
My white red and platelets are back normal but kidneys are heading the wrong direction, he is have it my primary handle it, he called it chronic Kidney Stage 3a. I am 80 feel good
I have not, however I know they look at that function alot. My daughter is dealing with some kidney issues, right now she's on a low sodium diet.
Has Anyone Taken Etoposide? What's The Side Effects?
Get in pill form if you can. Liked it way better that way than a drip.
For Those On Calquence For SLL/CLL, Did Your White Cell Counts Go Up To An Abnormal Range In The 1st Few Months Of Taking Calquence?
Dr. will not take another blood test and CT scan for 3 more months so we won't know if Calquence is working til he's taken for a total of 5 months .
Ok, Cathy- no problem.😊
Has Anyone Had These Symptoms. I Take Brukinsa (zanubrutinib)2 Capsules Twice A Day.
I have CLL, diagnosed in June 2022. Started oral treatment in Dec 2023. I had 3 episodes of dizziness, upset stomach since December. My lumph nodes were swollen in my neck and under my arms.
Thank you so much for the comments. It helps. I was thinking it may be a blood pressure issue as well.
Has Anyone With DLBCL Have To Have CNS Prophylaxis? If So How Effective Was It And What Were The Side Effects?
I've had 2 occurrences of CNS lymphoma .I've had a total of 13 Methotrexate treatments each time I was in hospital for a week and then I had Stem Cell Transplant that I was in hospital for about a… read more
Smzl For 18 Yr. Splenectomy;then No Problems; Good Bloodwork But Now Constant Itching Has Started. Any Suggestions -is This Typical. Age 72
I totally agree. You need to see the oncologist before July. One of the signs of lymphoma was itching… I had no idea - I was trying to figure out what I was allergic to!!
You have to be your own… read more
Wait And Watch? Or Bendamustine And Rixutan 6 Cycles.
I was diagnosed with indolent Mantle Cell Lymphoma. No symptoms, almost nothing to detect in blood test and some very small lymph notes seen on PET scan. Biopsy and testing pointed to very slow indolent process. Had 4 months first follow up scan and blood test. Very little changes in scan and blood test. I have urticaria for 2.5 years which was not attributed to any lymphoma at that time. But now it may have been a symptom of it. Doctor offered now those 2 choices. She says that this treatment… read more
Bendamustine and Rituximab have severe side effects for some of us.. lookin resources for this info or any reputable website..
I Have Daytime Sweats That Get My Hair Wet My Face My Upper Torso When I Do The Lightest Activity And It Stops You In Your Tracks
My oncologist never asked what symptoms I am having his visits are 15 min ! And I try to ask question as I have RUNX1 familial rare platelet disorder related to multiple malignancies and have yet to be tested or treated and already having pulmonary embolism you would think ? The lab test and tx is under Pubmed ! It is discouraging and I am not going to be told to go to Mayo, Moffitts, UFShands the worse specialist that assume a patient is alcoholic rather than read the medical notes it is NAFLD… read more
Hi Cathy - I highly recommend your making an appointment with a different oncology group. No need to share your experience you've had with the group with which you are currently a patient. Have access… read more
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