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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Advice Are You Grateful To Share With Others About Lymphoma?

By A MyLymphomaTeam Member 42 answers
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Do You Have A Hobby To Help Take Your Mind Off The Cancer?

By A MyLymphomaTeam Member 26 answers
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What Tips Do You Have To Help With Seasonal Allergies?

By A MyLymphomaTeam Member 34 answers
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How Does The Cold Affect Your Lymphoma?

By A MyLymphomaTeam Member 58 answers
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2183 questions

Hi Linda How. Are You

A MyLymphomaTeam Member asked a question 💭
Florida, NY
A MyLymphomaTeam Member

I'm feeling great !! How are you feeling??

January 27, 2024

How Do People Deal With Hair Growing Back? Does It Get Thicker Over Time? At What Point Do You Go To A Stylist?

A MyLymphomaTeam Member asked a question 💭
Valley Springs, CA
A MyLymphomaTeam Member

I battled breast cancer 21 years ago and my hair grew back really curly. I loved it but as it got longer, it straightened out. I am told when I start Bendamustine, I will not lose my hair.

January 26, 2024

I Had Large B Cell Non Hodgkin Lymphoma Diagnosed In 2022. Now I Am In Remission. My Recent Scan Was Clear. But Was Showing Up Non

A MyLymphomaTeam Member asked a question 💭
Indian, AK

Non hypermetabolic lytic sclerotic with mild diffuse increase metabolic activity in the marrow of the axial and appendicular skeleton. My cancer was spread to the bone marrow. Now I am back to normal. But of late I am starting to get some pain in my lower back. Should I be worried? Please advise.

A MyLymphomaTeam Member

I would worry about lower back pain too because of that increase in hypermetabolic increase in the axial skeleton which kinda points to your back anyway. Like Kelly said contact your oncologist and… read more

January 30, 2024

If You Are Taking Brukinsa For Your Treatment Are You Suffering With Extreme Joint Pain And What Are You Using To Relieve The Pain?

A MyLymphomaTeam Member asked a question 💭
Glen Allen, AL
A MyLymphomaTeam Member

I have been on Brukinsa for about 11 months and have not had any joint pain

January 27, 2024

What’s Been Your Experience With IVIG?

A MyLymphomaTeam Member asked a question 💭
Colorado Springs, CO
A MyLymphomaTeam Member
January 25, 2024

Can CLIPPERS Be Correlated With Diffuse Large B Cell Lymphoma?

A MyLymphomaTeam Member asked a question 💭
Atlanta, GA
A MyLymphomaTeam Member

Hi Sally, I'm not sure. I think I got mine from using Roundup, to clean fence rows and ditches. I've had mine for several years. I'm still in the wait and watch mode.

April 7, 2024

Has Anyone Had Treatment For Double Hit B Cell Lymphoma?

A MyLymphomaTeam Member asked a question 💭
Toronto, ON

I have just learned I have double hit non Hodgkin's lymphoma and the doctors are reluctant to change my treatment options because I am over 70. But, I am an otherwise active, lively person and I may want to seek a 2nd opinion.

A MyLymphomaTeam Member

Finished six rounds of R-CHOP last May and straight into radical radiotherapy for fifteen sessions. PET scan after six weeks showed ‘residual’ activity but after a second PET scan six weeks later all… read more

June 18, 2024

What Lessons From Your Lymphoma Experience Are You Applying In 2024?

A MyLymphomaTeam Member asked a question 💭
San Francisco, CA
A MyLymphomaTeam Member

Yes, traveling is scary especially out of the country with this disease, but I want to be close to my Oncologist i so get that not wanting to travel

October 18, 2024

What Constitutes Complete Remission?

A MyLymphomaTeam Member asked a question 💭
Northern New Jersey

I have follicular lymphoma, and after completing R-CHOP last January my PET scan still shows a couple of enlarged lymph nodes in the abdomen. I have no other symptoms and the doctor hasn't suggested further treatment yet. I'm not sure if I should think of myself in remission or not. Maybe just watching and waiting. My next PET scan is in February.

A MyLymphomaTeam Member

Njnj,
Good luck on your upcoming scan. Kelly

January 24, 2024

Does Baby Aspirin Help With Mesentary Involvement Anne 10

A MyLymphomaTeam Member asked a question 💭
Ontario, CA
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