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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Lessons From Your Lymphoma Experience Are You Applying In 2024?

By A MyLymphomaTeam Member β€’ 77 answers
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Which Lymphoma Symptom Surprised You The Most?

By A MyLymphomaTeam Member β€’ 84 answers
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What Are Your Top Tips For Dealing With Lymphoma In The Heat?

By A MyLymphomaTeam Member β€’ 45 answers
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Do You Have A Hobby To Help Take Your Mind Off The Cancer?

By A MyLymphomaTeam Member β€’ 26 answers
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2183 questions

Is Any One Out There Anemic And Getting Blood Transfusions. I Feel I Am The Only One In This Category??

A MyLymphomaTeam Member asked a question πŸ’­
A MyLymphomaTeam Member

I'm late answering your question, but yes I continued to take my Target med, Ibrutinib while I got the transfusions.

January 30, 2024

Has Anyone Found A Medicare Part D Plan That Has A Reasonable Copay For Imbruvica (ibrutinib) Which I Have To Take For The Rest Of My Life.

A MyLymphomaTeam Member asked a question πŸ’­
Swampscott, MA

I need to take Imbruvica (140mg) for the rest of my life for Waldenstroms Lymphoma and AbbVie has given it to me for free for two years but has rejected my renewal application. My drug insurance plan, WellCare, quoted me $4,800/month copay. I can't afford $50,000 a year. Imbruvica is one of the ten drugs Medicare will cover. The number of plans they offer is overwhelming. I am going to call Medicare today and hopefully someone will help me. The cost of this drug without insurance is insane -… read more

After How Many Chemo Treatment One Gets Remission ? I Am On Paula-Rchop(6 Treatments)

A MyLymphomaTeam Member asked a question πŸ’­
Houston, TX
A MyLymphomaTeam Member

It depends on what you’re PED test results are

March 22, 2024

I Was Diagnosed With T-cell LGLL And I Was Told Because It It Rare To Be Placed In The Active Monitoring.

A MyLymphomaTeam Member asked a question πŸ’­
Indianapolis (Carmel), IN

Vision Degradation During Chemo.

A MyLymphomaTeam Member asked a question πŸ’­
Houston, TX

I am experiencing my vision degradation (along with dryness ) at much faster pace then ever. Could it be due to Chemotherapy i am undergoing ? I just finished my 4 round of R / P - CHOP chemo for DLBCL. Raised my concern with doctor and he said he will get back to on that. Any one experience the same ?

A MyLymphomaTeam Member

Looking forward to hear your experience. I just finished my 4th round of chemo

January 26, 2024

I Wish To Usk Is It True Burketts Limphoma Cured After Years Remission Or After 2 Years?

A MyLymphomaTeam Member asked a question πŸ’­
Malta, MT
A MyLymphomaTeam Member

Sorry that you have such a full plate. I hope you take some time to rest and relax if you can.

January 31, 2024

What Are The Survival Rates For An 80 Year Old Woman With Non Hodgkins Lymphoma?

A MyLymphomaTeam Member asked a question πŸ’­
West Midlands United Kingdom

Non Hodgkinslymphoma

A MyLymphomaTeam Member

I was diagnosed age 79 with NHL slow growing, in 2022. Oncologist said he has had patients live 20 years with this type. I asked if one can have this with no symptoms pre diagnosis (unless you can… read more

February 2, 2024

Can A Sinus And Respiratory Infection Show Up On Cancer Scan With Two Swollen Lymph Nodes In Pelvic Area Be My Lymphoma Is Back After 6 Yr?

A MyLymphomaTeam Member asked a question πŸ’­

I am getting a pet scan on Jan 24 to see if my lymphoma is back after six yr cancer free. I had a sinus and respiratory infection when I had my cancer scan done, it might be that my lymph nodes were swollen due to me being sick with a sinus and respriratory infection. I am worried and just waiting to see. Any one ever hear of that?

A MyLymphomaTeam Member

Lymph nodes swell when the body has an infection. I had yearly sinus infections until past August when B cells were destroyed by Rituxan along with cancerous B cells (Marginal Non Hopkins Lymphoma)… read more

January 19, 2024

Hello Everyone, I'm Caroline Diagnosed With NHL Just Finished The Treatment Of Rchop

A MyLymphomaTeam Member asked a question πŸ’­
Kenya
A MyLymphomaTeam Member

Any side effects?

February 4, 2024

Has Anyone Had To Take The Shot For Regrowth Of White Blood Cells? What Side Effects Did You Experience?

A MyLymphomaTeam Member asked a question πŸ’­
Hampton, VA
A MyLymphomaTeam Member

Everyone will have different side effects the firt few times , I had BAD back pains where I could not walk, take two Tylenol before the shot

January 22, 2024
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