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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Tips Do You Have To Help With Seasonal Allergies?

By A MyLymphomaTeam Member 34 answers
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What Are Your Top Tips For Dealing With Lymphoma In The Heat?

By A MyLymphomaTeam Member 45 answers
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What Advice Are You Grateful To Share With Others About Lymphoma?

By A MyLymphomaTeam Member 45 answers
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I Suspect The Cov'd Vaccine Triggered Lymphoma

By A MyLymphomaTeam Member 26 answers
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2188 questions

I Have Been In Remission For 3 Months Now From WM. How Does This Affect My Risk Of COVID-19?

A MyLymphomaTeam Member asked a question 💭
Doncaster, UK

Is the risk the same as if I was still receiving treatment or will my risk be similar to other people in the population?

A MyLymphomaTeam Member

Glad to hear you’re in remission Michael! 3 months out I would error on the side of caution and be as protective as possible. Some treatments linger in our system for a while. I was treated with Rituxread more

November 18, 2023

Does / Did Everyone Have Access To A Nurse Navigator?

A MyLymphomaTeam Member asked a question 💭
Odenton, MD

Does / Did everyone have access to a nurse navigator? Maybe called something else at your treatment center. This would be a RN guide who can help you navigate the hospital, social services, and care options.

What was your experience with a nurse navigator?

A MyLymphomaTeam Member

Very responsive through our patient portal.

November 20, 2023

Is There A List Of The Abbreviations Somewhere? I Hardly Ever Know What Disease People Are Referring To When They Use The Abbreviation.

A MyLymphomaTeam Member asked a question 💭
Los Angeles, CA
A MyLymphomaTeam Member

Phil6,
Hi! Sometimes I have to Google the abbreviations. And then I also learn about them too. I have/had DLBCL which stands for: Diffuse Large B Cell Lymphoma. It's a non Hodgkins type. Kelly

November 16, 2023

Mouth Sores

A MyLymphomaTeam Member asked a question 💭
Danville, VA

Please someone tell me how to deal with mouth sores. I'm in so much pain I can't eat. I've tried everything.

A MyLymphomaTeam Member

Tamara4,
Hi I have a girlfriend that gets mouth sores with her chemo and her oncologist called in a prescription type of mouth wash for her. I hope you feel better soon. Kelly

November 16, 2023

Why Do Doctors Only Treat Follicular Lymphoma If It Has Only Spread To One Area?

A MyLymphomaTeam Member asked a question 💭
Carter Lake, IA

I don't really understand why they don't try to treat when it is widespread. I haven't really found any reasoning for no treatment. It has been over a year since I was diagnosed. I do have other health issues and they just seem to be getting worse, I have COPD, conanary artery disease, I had a stent put in a few months ago and now I have to get a second mammogram and a scan because of the recent density of tissue. Does all this really matter if the cancer they don't treat just makes other issues… read more

A MyLymphomaTeam Member

Best place to go. He’s going to be fine.

April 23, 2024

Has Anyone Received Inconclusive Results From Immunophenotyping Flow Cytometry?

A MyLymphomaTeam Member asked a question 💭
Pinehurst, NC

Has Anyone Had A Relapse After 16 Months Of Being Cancer Free And Having It Come Back In The Thalamus Part Of The Brain?

A MyLymphomaTeam Member asked a question 💭
Lethbridge, AB
A MyLymphomaTeam Member

oohooh such sadness.... *hugs and tender thoughts*

November 17, 2023

Has Anyone Had Car -T Cell Treatment For Large B NHD Lymphoma

A MyLymphomaTeam Member asked a question 💭
Edinburgh, UK
A MyLymphomaTeam Member

I have. Large B cell NH lymphoma. My main tumor is in my colon. I have also gone through Car T cell therapy. It did not work for me, but they have had a lot of successes. I hope you go into remission… read more

January 29, 2024

How Are You Dealing With Neuropathy In Your Fingers? Any Suggestions?

A MyLymphomaTeam Member asked a question 💭
Milwaukee, WI

Anyone Diagnosed With CNS Lymphoma?

A MyLymphomaTeam Member asked a question 💭
Albany, NY
A MyLymphomaTeam Member

I had 2 rounds of matrix which led to lung clots and pneumonia so they wouldn't let me continue. But since then a course of whole brain radiotherapy has God rid of tumours but have now apparently got… read more

November 13, 2023
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