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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyLymphomaTeam Member 26 answers
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Could You Share Any Dietary Changes And Tips That Have Helped With Lymphoma?

By A MyLymphomaTeam Member 48 answers
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What's A Common Misconception About Lymphoma?

By A MyLymphomaTeam Member 65 answers
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What Are Your Top Tips For Dealing With Lymphoma In The Heat?

By A MyLymphomaTeam Member 45 answers
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2196 questions

Is Lymphoma The Same As Polycithemia

A MyLymphomaTeam Member asked a question 💭
Mesa, AZ
A MyLymphomaTeam Member

Actually there is some debate about that "if it looks like a fish and swims like a fish then maybe"? https://news.cancerconnect.com/myeloproliferati... Best C

September 2, 2023

Does The Struggle Ever End

A MyLymphomaTeam Member asked a question 💭
Mission Viejo, CA

I have been battling so many physical issues lately that I’m just trying to find out if I’m going to get peace back in my life?

A MyLymphomaTeam Member

Just keep strong, positive attitude and pray.
You are very important.
You have to be your own advocate along with the help from our Great Physician 💚🙏💚

September 6, 2023

Can Reactive Lymph Nodes Mimic Lymphoma Swollen Nodes (due To Relapse)?

A MyLymphomaTeam Member asked a question 💭
East Rochester, NY
A MyLymphomaTeam Member

AnnaBates,
Thanks for your reply. Once you've had "bad" lymph nodes, it messes with your thinking. Your info was helpful.

September 2, 2023

Chop R Side Effects

A MyLymphomaTeam Member asked a question 💭
Canada, KY

I am currently undergoing radiation to the skull and spine and will start CHOP R early Sept. I had an OK management with Bendamustine and able to work from home but how have many of you managed with CHOP R?

THANKS so much
Ramona

A MyLymphomaTeam Member

Thank tou

September 2, 2023

Is There Any In The Group That Has SMZL, Splenic Marginal Zone Non Hodgkin's Lymphoma?

A MyLymphomaTeam Member asked a question 💭
Chattanooga, TN

I understand it's rare. I have a group on Facebook but looking for others with SMZL.

A MyLymphomaTeam Member

Anyone have pains in their spleen after being in remission and doing rituximab?

August 19, 2024

Update To A Post About "chemo-brain"

A MyLymphomaTeam Member asked a question 💭
Lebanon, ME

Awhile ago I posted a comment regarding chemo-brain and how the diagnosis was annoying to me. I prefered a more clical term. I was inclined to propose the idea that aphasia was perhaps a big part of it. Still may be and cognitive impairments do lend some credibility to the occurrence. Well I discussed this with my PCP the other day and she assigned this term as a medical term to describe "chemo-brain".

Chemo related cognitive impairment.

What's One Natural Remedy That's Helped In Managing Your Lymphoma?

A MyLymphomaTeam Member asked a question 💭
San Francisco, CA
A MyLymphomaTeam Member

Exercise for sure! Eat well, and sleep well. A bit of wine and dark chocolate helps the heart too!

January 11, 2024

Avoiding Infection

A MyLymphomaTeam Member asked a question 💭
New Jersey, NJ

What do people do to avoid contracting infections from family, friends etc

A MyLymphomaTeam Member

In remission 4 years. Went through 6 months of chemo. I'd recommend mitake mushrooms if you like mushrooms and Ginseng root. I buy the powdered root and ad to my coffee grounds in my coffee maker… read more

August 23, 2023 (edited)

Refractory After RCHOP

A MyLymphomaTeam Member asked a question 💭

Hello, what’s the options when the Chemotherapy is not working and DLBCL progresses just 2 weeks after the finished RCHOP treatment?

A MyLymphomaTeam Member

R2 is 2nd line treatment Rituximab and Revlimid. It didn’t work for me. Now I’m 3 weeks into a clinical trial for a new bi-specific called Epicoritamab. There is another bi-specific already on the… read more

March 27, 2024

Developed A Fever Today. What Should I Do?

A MyLymphomaTeam Member asked a question 💭
Titusville, FL

I’m 51 and have stage IV DLBCL. I’m otherwise healthy with no comorbidities. Had my first R-CHOP treatment two weeks ago and didn’t experience any side effects during or after treatment. This evening I had several episodes of chills and then began feeling hot. Took my temperature and it was 101.4 degrees. Was around someone a few days ago who has since been diagnosed with Covid so I took a Covid test which was negative. I’m sitting here now with mild sweating and a headache. Took Tylenol earlier… read more

A MyLymphomaTeam Member

I’m so glad you’re in the right place. Prayers for a speedy recovery friend!

August 21, 2023
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