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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Are Your Top Tips For Dealing With Lymphoma In The Heat?

By A MyLymphomaTeam Member 45 answers
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Do You Have A Hobby To Help Take Your Mind Off The Cancer?

By A MyLymphomaTeam Member 26 answers
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What Lessons From Your Lymphoma Experience Are You Applying In 2024?

By A MyLymphomaTeam Member 77 answers
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How Does The Cold Affect Your Lymphoma?

By A MyLymphomaTeam Member 58 answers
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2183 questions

Has Anyone Also Have Lupus In Addition To Lymphoma?

A MyLymphomaTeam Member asked a question 💭
Yuma, AZ
A MyLymphomaTeam Member

Hi Teri, I don’t have lupus but I do have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Mast Cell Activation Syndrome, Ehlers Danlos Syndrome and Marginal Zone Lymphoma-Stage 4 and chronic pain… read more

January 17, 2024

Can I Donate Blood If I Have Smoldering NHL?

A MyLymphomaTeam Member asked a question 💭
97013
A MyLymphomaTeam Member

I wouldn't want to get that blood in me!!!

January 15, 2024

How Did You Find Out You Had Lymphoma? What Were Your Symptoms?

A MyLymphomaTeam Member asked a question 💭
Los Angeles, CA

I went for my yearly oncology appointment for breast cancer I had 21 years ago when my oncologist felt a lump where I had reconstruction surgery. I thought it was scar tissue and she had me do an ultrasound followed by a biopsy where lymphoma was discovered in my axillary lymph node and not the lump she initially felt.

A MyLymphomaTeam Member

I was going to the ear doctor and he found what I thought was a lipoma on my clavicle but he said lymphoma. I went for a pin biopsy and then a core biopsy to confirm FL.

January 17, 2024

Wondering If After Treatment Anyone Has Traveled And Done Hikes Where You Are At A High Altitude (ex. Peru) Was It Possible? Howd You Feel?

A MyLymphomaTeam Member asked a question 💭
Hamilton, ON

Looking to travel after I complete 4 months of ABVD treatment for Hodgkin lymphoma, with the OK. from the Dr. (I am about halfway through my treatments currently) I'd love to go to Peru when I am finished but very concerned about how the altitude will impact me. It would be about 4 months after treatment. Would love to hear anyones thoughts or how they felt after treatment

A MyLymphomaTeam Member

I live in Colorado, Im 13 months past chemo in CR mode. I have done the Manitou Incline several x. I had no altitude problems.

March 18, 2024

I Have Developed Arthritis In My Wrists And Hands And Wonder What This Might Mean.

A MyLymphomaTeam Member asked a question 💭
West Chester, PA

In October had Rituxan remove all affected B cells.

A MyLymphomaTeam Member

Definitely more sensitive to cold, both inside and outside. Had very high cold tolerance before chemo, but all gone and get chills easily and often

January 17, 2024

Lost All My Hair During My 6 Months Of Chemo. My Hair Has Grown Back Over This Past Year Post Chemo EXCEPT For My Underarm Hair. Why Is This

A MyLymphomaTeam Member asked a question 💭
Westport, NZ
A MyLymphomaTeam Member

that's a little minimystery!! Better than missing your eyebrows!! ;-)

January 15, 2024

How Long Did It Take You To Grow Just One Inch Of Hair Back After Chemo?

A MyLymphomaTeam Member asked a question 💭
Houston, TX

I’ve got DLBCL and am almost through my 6 rounds of R-CHOP. I lost all my hair after the first round. My husband and I want to celebrate me finishing chemo with a nice vacation, but I’d like to wait until I have at least a little hair; like maybe just a crew cut.

A MyLymphomaTeam Member

Mine was so slow coming back. Worse it was not my hair. It was alien hair. Texture, color was so disappointing. It was even curly in spots causing it to twig out. It did not grow evenly. I heard many… read more

February 27, 2024

Wife Just Diagnosed With Follicular NHL. She Has A Very Swollen Lymph Node In Her Groin. Mayo Clinic Diagnosed Her Condition After Biopsy.

A MyLymphomaTeam Member asked a question 💭
Chino Valley, AZ

I think her treatment regime will be 12 to 17 days of out patient focused radiation to the groin lymph node and possibly chemo imunno treatment

A MyLymphomaTeam Member

My husband was diagnosed at Mayo in Jacksonville.with Follicular NHL. last March. They first wanted to watch and wait. Then decided to do 12 rounds of radiation. He’s been in remission since Oct. He… read more

January 16, 2024

I Have A PET Scan Scheduled For 1/23/24. It Is My First One. What Should I Expect? Any Tips For Me Or Anything I Should Know?

A MyLymphomaTeam Member asked a question 💭
West Salem, WI
A MyLymphomaTeam Member

Pet scan and CT scans show any area of activity, & size. It can be intimidating, where i go there is music you can tell them what you want to hear. They will give you a warm blanket
You will… read more

January 13, 2024 (edited)

I Have Non Hodgkin’s Lymphoma, SLL, Entering My 6th Year Of Watch And Wait. My Neutrophils In Lab Work Has Bottomed Out. Should I Worry?

A MyLymphomaTeam Member asked a question 💭
Roundup, MT
A MyLymphomaTeam Member

Hi! Apparently neutrophils being low can cause less immunity to infections. Doc thought it being so low meant they had read the test wrong or counted wrong. Ran it again, it was worse. He then… read more

January 23, 2024
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