Has Anyone Also Have Lupus In Addition To Lymphoma?
Hi Teri, I don’t have lupus but I do have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Mast Cell Activation Syndrome, Ehlers Danlos Syndrome and Marginal Zone Lymphoma-Stage 4 and chronic pain… read more
Can I Donate Blood If I Have Smoldering NHL?
I wouldn't want to get that blood in me!!!
How Did You Find Out You Had Lymphoma? What Were Your Symptoms?
I went for my yearly oncology appointment for breast cancer I had 21 years ago when my oncologist felt a lump where I had reconstruction surgery. I thought it was scar tissue and she had me do an ultrasound followed by a biopsy where lymphoma was discovered in my axillary lymph node and not the lump she initially felt.
I was going to the ear doctor and he found what I thought was a lipoma on my clavicle but he said lymphoma. I went for a pin biopsy and then a core biopsy to confirm FL.
Wondering If After Treatment Anyone Has Traveled And Done Hikes Where You Are At A High Altitude (ex. Peru) Was It Possible? Howd You Feel?
Looking to travel after I complete 4 months of ABVD treatment for Hodgkin lymphoma, with the OK. from the Dr. (I am about halfway through my treatments currently) I'd love to go to Peru when I am finished but very concerned about how the altitude will impact me. It would be about 4 months after treatment. Would love to hear anyones thoughts or how they felt after treatment
I live in Colorado, Im 13 months past chemo in CR mode. I have done the Manitou Incline several x. I had no altitude problems.
I Have Developed Arthritis In My Wrists And Hands And Wonder What This Might Mean.
In October had Rituxan remove all affected B cells.
Definitely more sensitive to cold, both inside and outside. Had very high cold tolerance before chemo, but all gone and get chills easily and often
Lost All My Hair During My 6 Months Of Chemo. My Hair Has Grown Back Over This Past Year Post Chemo EXCEPT For My Underarm Hair. Why Is This
that's a little minimystery!! Better than missing your eyebrows!! ;-)
How Long Did It Take You To Grow Just One Inch Of Hair Back After Chemo?
I’ve got DLBCL and am almost through my 6 rounds of R-CHOP. I lost all my hair after the first round. My husband and I want to celebrate me finishing chemo with a nice vacation, but I’d like to wait until I have at least a little hair; like maybe just a crew cut.
Mine was so slow coming back. Worse it was not my hair. It was alien hair. Texture, color was so disappointing. It was even curly in spots causing it to twig out. It did not grow evenly. I heard many… read more
Wife Just Diagnosed With Follicular NHL. She Has A Very Swollen Lymph Node In Her Groin. Mayo Clinic Diagnosed Her Condition After Biopsy.
I think her treatment regime will be 12 to 17 days of out patient focused radiation to the groin lymph node and possibly chemo imunno treatment
My husband was diagnosed at Mayo in Jacksonville.with Follicular NHL. last March. They first wanted to watch and wait. Then decided to do 12 rounds of radiation. He’s been in remission since Oct. He… read more
I Have A PET Scan Scheduled For 1/23/24. It Is My First One. What Should I Expect? Any Tips For Me Or Anything I Should Know?
Pet scan and CT scans show any area of activity, & size. It can be intimidating, where i go there is music you can tell them what you want to hear. They will give you a warm blanket
You will… read more
I Have Non Hodgkin’s Lymphoma, SLL, Entering My 6th Year Of Watch And Wait. My Neutrophils In Lab Work Has Bottomed Out. Should I Worry?
Hi! Apparently neutrophils being low can cause less immunity to infections. Doc thought it being so low meant they had read the test wrong or counted wrong. Ran it again, it was worse. He then… read more