Questions & Answers

Hi all, we are getting read for an autologous bone marrow transplant for my husband's PTLD and wondered if anyone else here has been through that and what all we can expect. He's currently going through 3 cycles of Rituximab, Carboplatin, Etoposide, Ifosfamide and Mesna. His third cycle is in a week. After that how long do you wait before going into the transplant process? Wondering if it is pretty quick transition to the transplant process or is there a recovery/prep period before all of that… read more

I had 2 liters removed last week but I’m still having problems breathing, walking or anything.
This is not how I wanted to spend the rest of my life, no quality 😩

I did not realize that this is becoming "a thing", yet here we are. For example: So now when you get test results - days, weeks or God forbid maybe months later - you may get billed for the office to contact you with results or to message back and forth instructions.

https://www.patientpower.info/navigating-cancer...(Phone number can only be seen by MyLymphomaTeam users)&mkt_tok=NTQxLUdLWi0yNDMAAAGOyFDad6RszYBkuBLcUCHtGN15oe2TLwd49n-Tr9FvM9jb6XmPlOq-n0uLR8UuXU7uiSI2QDeS-u581JeqVWq4kbjIjAKy… read more

I had Non-Hodgkin's lymphoma stage 4 and I am now cancer free it's been 3 months since my last chemo treatment and I am still very fatigued and weak On My Feet if anybody knows how long this last please let me know I am not myself and it is scaring me please help

Had an auto t-cell transplant with relapse and they want to use just romidepsin for treatment.

I found out I had follicular lymphoma in my right groin in February 2021. In Dec 2021, I had a CT scan and found a small lymph in my right armpit. I am on watch & wait with no symptoms. I had a mammogram last week& need to do a follow up on the right breast. I am nervous. what others did watch and wait and at what point was it changed to treatment. My doc said that I wouldn't need chemo, and if the groin lymph node got bigger, they would do radiation. But not sure if that changes with lymph… read more

Here is one specific video about Watch and Wait:

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Even though it is geared to folks with CLL and SLL (that is not my diagnosis), I thought it useful.

In my NHFL travels, I am always seeking more information. Check out "The Patient Story" channel on YOUtube. It was started by a west coast TV news journalist who was diagnosed with Stage 3 NHL in 2016. She found support/information for "younger" CA patients to be lacking. Since that time, her scope has vastly expanded… read more